No matter what

No matter what

Wednesday, December 7, 2016

Wyatt's update

I wasn't sure what to expect as I walked into the boys' room. I'd been busy with appointments today and hadn't checked to see how Wyatt was doing. Honestly I was a little afraid to call.
The nurse practitioner and I made eye contact as I walked through the big double doors that required special privileges to open. She nodded at me, a silent message meaning she'd meet me in the boys' room.
When I walked into their room, I saw two babies and the nurse was working on an art project (a good sign). Immediately I went to Wyatt and asked him how he was feeling, as if he'd respond to me. He was fussing at the high flow nasal cannula. Then was fussing about how his head was positioned. Then there was something else he was fussing about. I hadn't figured it out by the time the nurse practitioner came in.

Wyatt's latest x-ray looked good enough that they stopped suctioning out his stomach. They were trying to get some of the air out of his intestines and Wyatt hated that tube. So that tube was gone. His feeding tube was gone because they're still withholding his feedings. They want one more x-ray to look good which they'll do in the morning. She expects he'll be back on feedings in the morning because he was acting like a healthy, albeit hungry baby. He was pretty angry about everything, I was noticing, while I offered him a gloved finger to hold on to.

They had checked a BNP level on him to see how his heart was coping with his PDA. Great news is he's coping well. So they're going to restrict fluids and watch it. With his blood counts back to a normal level, he isn't showing any signs of the PDA affecting him. As he gets bigger and his lungs continue growing and getting better vasculature, the pressure will improve and it may close on its own. If not, then they can surgically close it which would be easier and much better tolerated by him if he was a toddler at the time.

So we'll wait and see how he does. First get his tummy back in order, which it looks like it is and we'll deal with the PDA if we need to.

With being so worried about him, I had to snuggle him a little while. He was angry at the world since his food had been taken away. But several hours worth of snuggling and holding his pacifier for him to suck on the entire duration seemed to calm him down. By the time I returned him to his isolette, he seemed like a happy little boy. I wish I could have held him longer.



Cameron is doing well. He continues to try and remove his nasal cannula. He's such a feisty little guy. They both are. They're going to be so much fun.

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